Seven years

Tomorrow my baby will be eight years old.  It is just so hard to believe.  I have loved every minute of it (I think that is a gift from God, mommy amnesia, so we can forget the bad parts, like labor).  I believe in mommy amnesia.  My own mother says I was a perfect child, and well, I remember getting in trouble plenty, not to mention my horrible stubborn streak and intense need to always be right.  So tomorrow my baby is eight, but today he is seven, going on seventeen.  He is so grown up.  But I still get precious moments where he is still my baby.

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Why I do what I do

I love my job, but honestly there are some days where going into work is difficult.  I think the fact God called me to nursing is a blessing.  I feel that I was led to transplant was destiny.  I have looked several times since completing my Master’s for a new CNS position.  Four things keep me where I am.

  1. My patients
  2. My co-workers
  3. My doctors
  4. The area of science

Today was the Methodist Heart/Lung Support Group Picnic.  I like going to the picnic because we get to see our patients socially, not necessarily professionally.  I have grown quite attached to many of my patients, and I can honestly say I love them.  In school we are taught not to become emotionally involved.  Well I don’t think any of my professors ever worked transplant.  It is impossible to spend this much time with a person and not love them.

Part of the picnic is grouping the patients together and taking their picture according to time since transplant.  When this picture was taken I nearly cried.  I have been with these people since the beginning.  I love them all. 

Barb K., June C., Pat W. (heart), Colleen L., and Phil C.

Normalcy? Routine?

The first week of school is completed and we are back into somewhat of a normal schedule.  This summer has been crazy.  We have had something scheduled every weekend since April.  This past weekend we didn’t have anything scheduled except for fun.  I guess the activities of this summer have been fun, we just didn’t HAVE to be anywhere at ANY specific time. This was pure bliss.

Curtis is enjoyed his first week of school.  He has a couple of his friends in his class, so I think that helps.  He likes his teacher this year too.  Right now we only have soccer.  In a couple of weeks piano resumes, then a couple of weeks after that, Cub Scouts and youth choir.  I worry about Curtis being over-booked, but he seems to enjoy the different activities.  This may be his last season of soccer though, so we need to live it up.  In the Spring he will have baseball and next Fall he really wants to play football.  For the past three years we have tried two sports in the Spring, and I do not recommend it.  Curtis was exhausted and we were stressed by his constant schedule.

Florida in August

Yesterday morning presented us with the most spectacular view.  To see the sun come up over the ocean truly was amazing.  This past week Jeremy, Curtis, and I spent in Hollywood, FL.  I was one of the planners for the 2010 NATCO Annual Meeting.  The meeting went very well and more than met my hopes and expectations.  I was thrilled to have Jeremy and Curtis with me.  This was the first time that I wasn’t near tears at the end of the conference.  At the end of five days I miss my family so much I can hardly stand it.

While I was in sessions every day, all day, Jeremy and Curtis swam.  The pool provided an amazing view of the ocean.  Curtis wasn’t too hip about the salt water taste from the ocean, so after Friday we could only get him to put his toes in the sand.  I did get to stick my toes in the sand Friday and again yesterday before leaving.

Even with the stress of the conference there was a calm this week.  Was it because I had the blessing of my family with me, the ocean and beauty.  I’m not sure, but the calm was cherished.

Summer Amuzement

Every summer we take a few days and go to an amuzement park.  This year we went to Kings Island.  The weather was hot and miserable, but we had tons of fun.  Curtis’ favorite ride this year was the Scrambler.  I can’t even count how many times we road it.  Curtis finally talked Jeremy into riding it.  I felt bad though because he turned a little green.  I love the new Snoopy theme.  It just made me happy.  I liked hearing the Peanuts theme song.  It was a blast.

Transplant Coordination

Coordinating a transplant is one of the most exciting, frustrating, worrisome, and exhausting aspects of our job. For the last couple of years we have split call, meaning heart coordinators are only responsible for heart transplants and lung coordinators are only responsible for lung transplants. All offers are given to the coordinator on call. There is a coordinator on call 24 hours a day, 365 days a year. There are 6 lung coordinators and we take 5 days out of 30. There are 4 heart coordinators. They take every fourth weekend and one day during the week. We never know when the call can come in because death is unpredictable. Of all the lung offers we receive, only about 25% are usable organs. From those, many will be allocated to a candidate at another transplant center that is higher on the list than our candidate. The coordinator reviews the initial offer, if the donor does not meet any turn down criteria (such as cancer), and then we inform the OPO (organ procurement organization) that we may be interested in the organ(s) for one of our recipients. If the organ(s) is offered back to us, then we call and review donor information with the surgeon. If the surgeon feels the organs are suitable, we then discuss potential recipients. Candidates are discussed according blood group, score on the waiting list (status for heart patients), then size. We do not want to put an organ that is too big or too small in our possible recipient. Once we have accepted an organ and decided which patient to transplant, that is when the adrenaline really kicks in and the flurry of activity starts. Almost simultaneous we need to contact the OPO and let them know we have accepted the organ, contact IOPO (Indiana Organ Procurement Organization) if it is an out of state donor, A7N, and the patient. Calling the patient is one of the fun parts and has provided us with the best stories. We have been hung up on because or patient thought it was a prank, asked to call back tomorrow because they are sleeping, etc. It is one of the emotional parts, for those of you that have been transplanted you understand the overload of emotion. This is the call you have been waiting for and we can feel your emotion. Once we have asked you our questions, answered your questions, and given you instructions, we proceed with coordinating the rest of the team. We work with the surgeon and OPO to determine what would be the best time to go to surgery. Many things factor into the timing of surgery, distance, recipient needs, transplant centers from other parts of the country accepting organs, etc. We call our surgery coordinator so she can schedule the surgery and call in a team for the donor and the recipient surgery and coordinate the supplies needed for both. We call admitting to let them know we need a patient admitted, the pulmonologist for the patient, the critical care to let them know they will be receiving a patient after surgery, blood bank to put blood on hold for the surgery, HLA if a crossmatch is required, A7N nurse to give orders, and contact procurement surgeon. (After all of these phone calls you now know why we have an adrenaline rush). Once we have made all the contacts and surgery has been scheduled, we wait. Sometimes there is really not a wait (as evidenced by those of you that we have met in the lobby) or it takes forever (sorry to those of you that we have starved for nearly a day). Surgery and timing can be affected by many things: weather, donor family, donor stability, heart recipient, host hospital surgery schedule, etc. I am usually on pins and needles until I hear from the donor team that the lungs (or heart when I did those) look good and we are proceeding with the surgery. I usually feel like I have held my breath up until then. At that time I feel I begin praying without ceasing (prayers were included before, but with all the calls that are required it is frequently interrupted). I pray for the recipients, their family, and the donor’s family. I pray for the families that were so gracious to give at a time of sorrow. One of the worst parts of our jobs, outside of losing our patients that we have developed wonderful relationships with, is hearing the donor stories. During the surgery we usually get the opportunity to get a few catnaps. We try to update the recipient’s family every 1-2 hours until they are out of surgery. Once our patient has been transplanted we remove their name from the list. Then we either go to bed (if we are lucky) or go to work.

I’m not ready for this!

I am taking pictures during family fun night.  While I was taking pictures of the kids waiting for the paddle boats I discover the most amazing thing.  My baby is holding hands with a little girl. 

Curtis and Madison have been friends since birth.  They were babies together in the Rosebud room at Speedway Baptist.  Madison’s cousin, Aidan, is one of his best friends.

Pissed off puppies

Oscar has gotten grumpy in is old age, so he was put in prison with scruffy this morning. Needless to say, they were not happy. They will cuddle together outside of the crate, but apparently it is too much togetherness inside the crate.

10 years ago…

As we head to a new decade it is common to think how our life was 10 years ago.  Ten years ago 9/11 was unfathomable.  Ten years ago we had a strong, increasing economy. Ten years ago we prepared for all computer systems to crash and a nationwide blackout because the computers would not be able to distinguish between 1900 and 2000.  Ten years ago there was no Curtis and David was still on dialysis.  I worked in the new combined unit of CCU and A3N–going from a novice CCU nurse to an “experienced” critical care nurse.  Jen still lived in Indy and we were able to get together for lunch when we wanted to.  Doug and Amy lived in Evansville.  My parents had already moved to Kentucky, but they came to visit frequently.  Jeremy was still in law school, so I didn’t get to see him much.  Kentucky basketball was still on top, the Colts were still the dolts, the Patriots were a laughing stock of the league, the Red Sox were still cursed.  As we head to this new decade I cannot help but think of all the changes in my live that have occurred in this 10 year period.  I gave birth to our pride and joy.  Jeremy graduated law school and we learned how real the movie “The Firm” was and what really matters in life.  David received the life-saving gift of a kidney from a 19 year old girl in Pennsylvannia named Lori.  I started working as a lung transplant coordinator and my life changed completely.  I emotionally brought my work home with me, for better or worse.  I completed my master’s and became involved in our national organization speaking at the national level about lung transplant.  My dearest friends have moved away leaving a gaping hole in my heart, but God has given me the blessing of additional friends.  The last half of this decade I have seen the loss of family, Grandma, Arnold, and multiple great aunts and uncles.  So as we head into this new decade I will be facing a lot more changes.  My baby boy will soon be heading off to college, and whatever other changes life will bring.  But this I know, God is there through it all.

Christmas Traditions

Growing up Christmas Eve was spent at Grany’s and Christmas Day was spent at Grandma’s. After I got married and started work, it was time to develop new traditions.
  1. Opening our stockings Christmas Eve
  2. Christmas Eve service at church
  3. Milk and cookies for Santa
  4. Breakfast casserole after presents